I Thought I Was Going To Lose My Son, The Government Did Nothing

My son, Murray started having seizures at two years old.

By six, he was having several tonic seizures each day – where sudden stiffness may afflict the arms, legs or body – which resulted in non-convulsive status epilepticus.

In other words, he lay in a hospital bed in a vegetative state. Watching my son fight near-death experiences and witness the tragic loss of his abilities – unable to move, talk or eat was utterly heart-breaking – I felt completely hopeless.

When he was diagnosed with Doose Syndrome, a rare and intractable form of epilepsy, at age five, I was ready to do everything I could to make my son better, but I couldn’t hide how fearful I was for his life.

– Read the entire article at Metro.

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